Camp Sundown is an extraordinary series, put together by Tel Aviv-based photographer Adi Lavy, that was captured in a New York summer camp for children with Xeroderma Pigmentosum or XP, a rare genetic disorder that causes sensitivity to ultraviolet light.
XP patients experience serious reactions to exposure of both natural and artificial ultraviolet light, and as a result have to avoid bringing their skin in contact with sunlight.
Camp Sundown is remarkable in that it is run like any other summer camp, with the exception that children only come out after dark. They sleep late and play inside until after sunset, at which point they go outside and participate in outdoor activities.
Photographing subjects sensitive to ultraviolet light presented various challenges to the photographer, who could only use light available in the environment for her night-time photos.
Disease-Specific Camp Photos
'Camp Sundown' Depicts Children Living With a Rare Genetic Disorder
Trend Themes
1. Disorder-specific Camps - Disruptive innovation opportunity: Develop specialized camps and programs that cater to individuals with specific disorders or conditions, offering them a safe and inclusive environment.
2. Photography for Social Impact - Disruptive innovation opportunity: Explore the power of photography in raising awareness and promoting understanding of rare genetic disorders or other marginalized communities.
3. Nighttime Activities and Recreation - Disruptive innovation opportunity: Create innovative nighttime activities and recreation options for individuals who are sensitive to light, providing them with opportunities for socialization and enjoyment.
Industry Implications
1. Healthcare and Wellness - Disruptive innovation opportunity: Develop specialized healthcare programs and services tailored to the needs of individuals with rare genetic disorders, ensuring their well-being and quality of life.
2. Photography and Visual Arts - Disruptive innovation opportunity: Integrate technology advancements and accessibility features into photography equipment or platforms to enable photographers to capture images in challenging environments.
3. Recreation and Leisure - Disruptive innovation opportunity: Design and create inclusive recreational facilities and activities that can be enjoyed by individuals with specific disorders or conditions, fostering a sense of belonging and empowerment.